:D you’re the best

I’m not offended at all!  It’s so fascinating to find out that there are actually people out there who have both, because the odds are so small.  It’s been a struggle to find eating disorder doctors who are open to the idea that some of my symptoms come from Ehlers-Danlos and not the eating disorder.  I think that the lack of control I feel over my body probably contributed to the initial experimentation with restriction, which eventually lead to my developing anorexia.

Hugs to you too!

We’ve got a freezer full of trader joe’s half-prepared food and should be fine!  We mostly seem to be coping pretty well.  I am not personally as afraid as I was last night but as this stretches on, things get a bit more tenuous.

Thanks <3

I guess we will see in the morning what the situation is, and then know then.  Everything is still up in the air and unfolding.

Thank you for your thoughts. <3

An MIT police officer was shot and killed.  There was an intense gunfight through the streets of Watertown and there were indications that bombs/incendiary devices were used.  My family doesn’t live here because I’m at uni.  The situation is still unfolding.  I am in my dorm with the doors locked.

We have been instructed to stay where we are and lock all the doors.

Things keep happening in the places I live and inhabit on a daily basis.  I don’t feel safe.

I’ve actually met a few people through tumblr who have both Ehlers-Danlos Syndrome and an eating disorder!  I absolutely adore my ring splints.  I was having a lot of trouble with my thumbs and my hand strength was greatly reduced because of it.  They were also very painful.  

Here is a post about my ring splints, for those who aren’t familiar with them.

The ones that I currently have are for the distal thumb joints, and those are simpler joints to brace.  They don’t tend to get in the way at all and I get lots of complements on my “unique” rings.  The silver is a great material choice because it is naturally antimicrobial, so if you have skin fragility, as most people with Ehlers Danlos do, any irritation is less likely to become infected.  I have the SIRIS Swan Neck splint in extra strength for my thumbs.  I personally didn’t like the boutonniere version because the extra ring gets in the way of some of my hand movements.  Here are all of the splints that they have for thumb IP problems (those effecting the middle joint farthest from the wrist).

If you also want to support the joint at the base of the thumb (the MCP joint), there are ring splints that are available, and they can be worn in conjunction with the IP splints.  I am also considering getting splints for my MPC joint because it causes me a lot of pain.  There are several versions of this type of splint available.  They are definitely more noticeable than my current splints.  

I would definitely recommend getting one to splint to start with and seeing how it works for you before investing in multiple.  It can also be helpful to try out Oval-8 splints, which are a plastic version and very cheap to see if you would be comfortable wearing them.  I also keep some Oval-8 splints around for things like going to a theme park or kayaking  where I could lose a splint.  You can buy them on amazon or through a hand therapist.

Anyway, I LOVE my ring splints and I wish I would have had them for my whole life, because so many things are easier now.  Best of luck and feel free to ask any more questions you have about the splints or EDS related topics :)

I haven’t received an ask about a personal trainer and weight, so do you think that you could resend it?  I would be glad to listen to whatever is troubling you.

I may not have gotten your ask or may have been emotionally unable to answer it at the time I received it.  I have one anon ask lingering in my recent inbox at the moment and I will try to respond sensitively to it.  I sometimes wait to respond to asks until I feel like I can give them the responses they deserve.  I also have other things than this blog going on in my life, so I appreciate some patience and respect of this space for what it is.  I’m going to respond to the ask I think you may be referring to under a cut because it may be triggering to some of my followers.

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Thanks love!  I love hearing from friends all over the world.  I hope you’re having a great week :)

Thank you.  I feel like it more and more every day.  Things are getting better <3

Thank you so much for reading and sharing in this journey with me and for taking the time to send me this kind message.  I am wishing you all of the best and I know that you can beat this. <3